Hemophilia Organizations
Hemophilia Federation
of America
Phone: 800-230-9797 or
337-261-9787
www.hemophiliafed.org
National Hemophilia
Foundation
Phone: 212-328-3700
www.hemophilia.org
Florida Hemophilia
Assocation
Phone: 888-880-8330
www.floridahemophilia.org
Hemophilia Foundation
of Illinois
Phone: 312-427-1495
www.hemophiliaillinois.org
Hemophilia Foundation
of Indiana
Phone: 317-396-0065
www.hemophiliaofindiana.org
Bleeding Disorders
Association
of Northeastern New York, Inc.
Phone: 518-782-9787
www.bdaneny.org
Bleeding Disorders
Association
of the Southern Tier
607.821.7249 (voicemail only)
P.O. BOX 538
Binghampton, New York 13902
www.bdast.org
Hemophilia of North
Carolina
Phone: (336) 725-4872 or
(800) 990-5557
Northern Ohio Hemophilia
Foundation
Phone: (216) 834-0051 or
(800) 554-HEMO
Southwest Ohio
Hemophilia Foundation
Phone: 937-415-0644
Delaware Valley
Chapter of NHF
Phone: 215-885-6500
www.hemophiliasupport.org
Tennessee Hemophilia
Bleeding Disorders Foundation
Phone: (615) 220-4868
or 888-703-3269
www.thbdf.org
Great Lakes Hemophilia
Foundation
Phone: 414-257-0200
www.glhf.org
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Hemophilia in the News
May 2008 | FDA Approves NOVO NORDISK's NovoSeven(R) RT (Coagulation Factor VIIa [Recombinant] Room Temperature Stable) for Hemophilia Patients With Inhibitors
April 2008 | Heparin
Contaminant Identified
April 2008 | Researchers
Discover Safer Anti-clotting Therapy
March 2008 | NHLBI
Issues First US VWD Guidelines
March 2008 | Transplanted
Liver Cells Correct Hemophilia A in Mice
March 2008 | Patient
Side Effects Cause Baxter To Suspend Heparin Production
March 2008 | CLSI
Publishes New Guidelines for Coagulation Testing
February 2008 | FDA
Approves New HIV Drug for Hard-to-Treat Patients
February 2008 | Researchers
Discover Minor Leg Injuries Can Increase Thrombosis
Risk
February 2008 | FDA
Approves Revised Label for Contraceptive Patch
January 2008 | Scientists
Use Stem Cells To Correct Sickle Cell Anemia in Mice
January 2008 | HTC
Publishes Study on Epidural Anesthesia in Pregnant Women
with VWD
January 2008 | British
Patient Undergoing Gene Therapy Develops Leukemia
January 2008 | Danish
Research Shows Sustained Clot Formation in Hemophilia
A Patients Treated with Dual Therapy
November 2007 | Hemophilia
Treatment Center Releases Study Data on Menorrhagia
in Adolescent Patients
November 2007 | Hematologist/Researcher
Elected to Institute of Medicine
October 2007 | New
Genetic Test for Warfarin Dosing Receives FDA Approval
October 2007 | Plasma
Shortfall in China Spurs Government and Community Response
September 2007 | Joint
Outcome Study Results Published in the New England Journal
of Medicine
September 2007 | Maraviroc
Receives FDA Approval
September 2007 | FDA
Approves Revised Labeling for Coumadin®
September 2007 | Research
Update: Study Published on Hemophilia B Gene Therapy
by Intramuscular Injection
August 2007 | Study
Identifies Predictors for HCV Treatment Success or Failure
August 2007 | Experts
Debate Gene Therapy Vectors
August 2007 | Gene
Therapy Clinical Trial Patient Dies
August 2007 | New
Oral HIV Drug Close to Approval in Europe
July 2007 | UK
Researchers Study Postpartum Bleeding in Women with
Factor XI Deficiency
July 2007 | European
Hematology Association Recognizes Thrombophilia Expert
July 2007 | Research
Update: Study Reveals Pregnancy Complications in Women
with von Willebrand Disease
May 2007 | National
Academy of Sciences Elects Bleeding Disorders Researcher
May 2007 | VCU
Researchers Evaluate Liver Biopsy in Hemophilia
April 2007 | Pioneering
Hematologist and Researcher Honored by UCI
April 2007 | UCSF
Scientists Examine Procedure to Relieve Cirrhosis Complications
April 2007 | New
Drug Candidate Could Circumvent Disease-Causing Genetic
Mutation
March 2007 | A
New Class of HIV Therapies Facing Approval
March 2007 | Scientists
Identify Protein Involved in HCV Infection
February 2007 | Mice
Teach Humans about von Willebrand Disease
February 2007 | St.
Jude Opens New Clinic for Children with Cancer and Blood
Disorders
February 2007 | Research
Update: “A Bare Bones Approach to Gene Therapy”
January 2007 | A
New Diagnostic Test for Hemophilia A
January 2007 | UC
Scientists Study Local Population for Brain Bleeding
in Warfarin Patients
January 2007 | Emory
University Scientists Study CDC Inhibitor Data
January 2007 | Scientists
ID Time Window For Effective Porcine Embryonic Tissue
Transplant
December 2006 | Decreased
Bleeding Frequency With Secondary Prophylactic Use Of
NovoSeven (REG) Shown
December 2006 | The
Hindu: Speakers Stress Need for Multi-Pronged Approach
to Combat Hemophilia
November 2006 | Hemophilia
Drug Linked to Blood Clots in Wounded U.S. Iraq Soldiers
May 2006 | Promising
Early Clinical Trials For Longer Acting Kogenate® Product
May 2006 | Canadian
Scientist Invents Potential Alternative For High-demand
Blood Product
May 2006 | Hemophilia
Foundation of Michigan (HFM) Visits Michigan Legislators
May 2006 | Grifols
Donates $1.4 Million in Hemophilia Blood Clotting Therapies
to World Federation of Hemophilia
May 2006 | Insurance
dilemma: families vs. business
April 2006 | Car
show, rally to raise money for bleeding-disorder research
April 2006 | Genetic
Test May Predict Onset of Serious Complication in Hepatitis
C Patients
April 2006 | Breakthrough
by Stanford Researcher May Lead to New Hepatitis C Treatment
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